lemma health

Hello i have had eczema for over 18 years and over the past year it has become worse than it’s ever been before. I have regular contact with dermatologist and consultants and regular blood test to monitor vitamin levels. i’ve been prescribed more or less every steroid cream available from eumovate to dermovate, i’ve tried predislone (helped but can’t used long term), double base, dermol, e45, centraben,antibiotics, ontiments, unsencted creams and lotions, dietary changes, a humidifier in my room. all of which was prescribed and recommended by professionals. currently i am on neoral medication but it is showing no signs of helping. i am at a point where i think nothing will ever work. can anyone recommend anything please.

I'm currently about a week and a half on cyclosporin (Neoral, 100mg 2 times a day), after trying many many many salves (?) and different creams. I'm not happy with the results :/ I will update in a few weeks (or earlier) with shots of my arms. Maybe it's too early to make a judgement. Does anyone here have other, positive or negative experiences with cyclosporin?

Recently got a very severe case of eczema, never got flare up my entire life. Just last April 2023, i've experienced one hell of a condition. Couldnt take a shower, couldnt sleep, couldnt wear clothes without feeling uncomfortable due to the oozing. Got diagnosed after and was on and off diffrent kind of pills and medications. I also got the side effect of corticoid due to unclear instruction from the doctors. Right now i've been taking Sandimmun Neoral (cyclosporin) 100mg for about 4 months with decreasing dose each month. I'm feeling alright. The flare up has gone, i can finally shower, lie down and wear clothes normally. Although im experiencing my first winter with this conditions, thought without the sweats i would be better but the dry weather makes my skin super dry and often get rash (red area and dead skins) even though im under medications still. I apply moisture regularly but its still quite annoying. Usually i take warm shower, but its holidays and i wanted to go to the hotspring with my family since i only got this once a year. Im wondering would be okay to go take such hot water as hot spring. Ofcourse I would apply heavy moistureizer ( currently using Vazeline and some other product from Zara or Zarza i dont remember the brand). I don't if it would cause another bad flare up or not. Please let me know your experience with this situation.

Hi folks! I will start with the tl:dr; My dermatologist wants to start Adtralza (Tralokinumab) therapy. Does anyone have experience with this? Or are you familiar with this? How do you travel when you're on such treatments? She has a strong preference towards Adtralza compared to Dupixent due to the limited possible side effects. Background: Been struggling with eczema for 30 years now (ever since I was a 3 month old baby). Back then, the only treatment doctors and dermatologists in the Netherlands were giving was cortisone cremes, which my mom has almost religiously been applying on my skin when i was a kid (can't blame her, she didn't know any better back then). Which I believe is the reason why my skin is currently so bad. Now I live in Belgium and after a terrible flare up decided to go to a local dermatologist. I have not been to any for the past 12 years or so because I simply lost my trust in the healthcare system regarding eczema. This new dermatologist immediately told me that shes shocked that doctors have only been giving me cremes so far. She set up a plan to get me on Adtralza as soon as possible. Over here, there are some conditions to meet before she's allowed to perscribe this. One of which is that the patient needs to have gone through a Neoral (cyclosporine) treatment first for max. 4 months. This treatment is pretty unpleasent since it drastically lowers your immunity and thus higher risk of getting sick/infections etc. With slower recovery times. Also there are quite some side-effects. Well, i am in my 3rd month of Neoral and the side effects are getting really bad. Frequent intense stomach aches, muscle sores, etc. But worst of all.. you know that feeling when you just feel like you're getting sick? Well that feeling, but every f*cking day! To make matters worse: my eczema got drastically better at first, but now its slowly coming back despite the treatment. So i just talked with my dermatologust about it and i am going to stop the treatment asap and we will move to Adtralza soon. She said these are bi-weekly injections that I will have to give myself. Besides not being to confident on giving myself shots (never had to do this), I am reading mixed experiences online. So turning to the trusted Reddit folks to hear your experiences! Also, I have some business trips and vacations coming up. I wonder how this works with traveling by plane. The injections need to be stored in a cool place i read.. Curious to hear how you all deal with these challenges and what your experience is with Adtralza!

Hello everyone, As most of you on this forum, I have been suffering from eczema since my childhood. I may not count the number of dermatologists I have been seeing in Belgium or France in order to better understand what was causing my eczema and how to mitigate the symptoms. Nothing ever really worked out for me and my eczema was always running back and killing me psychologically. Last year I followed a treatment called 'Neoral' and I could finally enjoy some months away from my eczema. It didn't totally disappear but this is what I was seeking for a long time. I however may not remember all the creams/treatments/tips I have been trying out without any result. I feel like every time I go to a new dermatologist, they are sure they know what is happening and how to treat it and it just feels like a big loss of time when nothing works out. Moreover, when I go to a pharmacy or soap shop, they always try to convince me that they have a product that really helps for eczema and that I should try it out. Most of it is just bullshit and well they just want to sell their products, so... It really heats up my heart seeing all the support and help that we may find on forums about eczema and especially here on this subreddit. I feel however that information is difficult to get and that getting a clear idea of what creams/treatments/tips has worked for a majority of us is even harder. And as research is struggling in understanding our sickness, I believe more than ever that mutual help is for now the best idea for our community. All these experiences brought me to an idea. I would thus love to create an application exclusively dedicated to eczema with the help of some of you. Here is how I see it: \- One part would be dedicated to a little glossary of creams/treatments/tips, where every one of us would be able to vote if it worked for him or not,what were the benefits/disadvantages of it. The goal being to gather all our experiences and have an easy access to stats and new ideas to help with eczema. \-A second part would be dedicated to recommendations of dermatologists that are competent in helping with eczema, in order to stop seeing dozens of dermatologists that believe knowing the problem and being wrong. \-A last part would be dedicated to updates about what is happening in research linked to eczema. So this is what I thought about so far. I would love to have your opinion about all this and to see if some of you are motivated in creating something like this. Thanks!